IEP GOALS and OBJECTIVES BANK

IEP GOALS and OBJECTIVES BANK

When planning for an upcoming IEP it is always a good idea to have some goals and objectives in mind for your child.  Where is a comprehensive list of goals and objectives that is bookmark worthy.

Posting it here so I can't lose it again.

Anny

NS Resources: 6 Books About Anxiety for Families with Special Needs

Tonight I came upon a good resource listing books about Anxiety for Families with Special Needs Children.  Many children and adults with Noonan Syndrome have anxiety and I thought I would bookmark this article and links to books to help with the anxiety.

6 Books About Anxiety for Families with Special Needs

Anny

Resources for Elemental Formula

Resource Link:

United States: State Insurance Mandates for Elemental Formula and Resources for Finding It. 

Radio Interview: Dr. Noonan, The Most Common Rare Medical Syndrome You've Never Heard Of

Iowa Public Radio: The Most Common Rare Medical Syndrome You've Never Heard Of

Radio Interview with Dr. Jacqueline Noonan and others on Iowa Public Radio

Originally aired February 27, 2014.
With Dr. Pamela Trapane, Ann Yurcek, and Nicole Reid a parent of Max with Noonan Syndrome.

I was blessed in being asked to be apart of this Noonan Syndrome Awareness opportunity. Being interviewed along with Dr. Noonan was an incredibly momentous occasion and with her retirement a historical documentary of Noonan Syndrome for all time.

Enjoy this.

Anny

Article: Autism and Girls

Much has been written lately about girls with autism not being diagnosed  and why.  It affects girls differently than boys.  This article is a great resource about how autism appears in girls and a bookmark worthy site.

11 Signs of Autism in Girls

With Autism and autistic tendencies being a part of Noonan Syndrome, understanding and seeing the signs in our girls is incredibly valuable.

Anny,  Mom to two girls on the spectrum.

Article: Prevalence of Autism Spectrum Disorder Phenomenology in Genetic Disorders: A Systematic Review and Meta-analysis

For a long time persons within the Noonan Syndrome population had symptomatology of sensory and social skills that were similar to those who are affected by Autism.  Slowly a few individuals were diagnosed and often fought for those diagnostics but told by the school one could not have both.

Research has now caught up and this article is a keeper when trying to get assessments and supports for those with Noonan Syndrome and Autistic tendencies.

Prevalence of Autism Spectrum Disorder Phenomenology in Genetic Disorders: A Systematic Review and Meta-analysis.   9-01-15  The Lancet Psychiatry.

Yes, those with Noonan Syndrome can be on the Autism Spectrum.

Anny

FREEBIE: Medically Fragile Child Welcome Door Sign

I had seen a post where a grieving Mom had created Welcome to My Home Door signs that warned people that a medically fragile child lived there. I contacted her because I needed one that said Children instead of a child. She so graciously quickly emailed me one for Becca and Mackie. I bought it for her cause and today I found someone had posted a FREEBIE. I have mine up and I see that people are more conscientious of watching out to make sure both of my kids stay healthy.

The freebie posted on Strugglingtosurvive.com 
Welcome Sign: This is the home to a medically fragile child.

I hope you enjoy this amazing find.  Thank you to the creator of this!

Anny